A Rare Disease that Spreads Silence Frontotemporal dementia (FTD) often goes undiagnosed in Australia, despite its devastating impact on families.
The case of Richard Stowe, who died at 63 after a prolonged battle with the disease, is a stark reminder of FTD's rarity and misdiagnosis. According to Dr.
David Foxe from the FRONTIER Research Group, delayed or incorrect diagnosis can leave patients "lost in the system.